Public Engagement

Engagement with the public is a fundamental part of the management and future of the SAIL Databank. The general public are involved in all levels of the management of SAIL Databank. Members of the public provide advice, give recommendations on safeguarding and ethical approval.

Public Involvement in Research

SAIL Databank is committed to include public involvement in research studies. We have an active Consumer Panel that provides us with the public’s perspective on data linkage research and there are opportunities for lay representatives to join research study teams.

Consumer Panel for Data Linkage Research

SAIL Databank has a long standing Consumer Panel which was established in 2011. It currently has 16 members with on-going recruitment.

Panel members are involved in all elements of the SAIL Databank process, from developing ideas, advising on bids through approval processes (via the independent Information Governance Review Panel), to disseminating research findings.

SAIL Databank consumer panel

The panel’s role includes;

Acting as advisors on issues in research
Advising on how best to engage with the public
Offering guidance on how to recruit people to study steering groups
Providing views on data protection issues
Discussing proposals for research
Reviewing information designed for a lay audience
Acting as advocates for data linkage research

To find out more about our data linkage research, please download our leaflet;

About the Health Informatics Group