SAIL PUBLICATIONS

The SAIL Databank: 10 Years of Spearheading Data Privacy and Research Utility

March 28, 2017

Jones KH, Ford DV, Lyons RA Swansea University DOI: http://dx.doi.org/10.23889/sail-databank.1001101 Introduction The Secure Anonymised Information Linkage (SAIL) Databank is a national data safe haven of anonymised health and administrative datasets about the population of Wales. It was established by the Health Informatics Group at Swansea University Medical School in 2007 with core funding from Health …


Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research

June 21, 2016

Lea NC, Nicholls J, Dobbs C, Sethi N, Cunningham J, Ainsworth J, Heaven M, Peacock T, Peacock A, Jones K, Laurie G, Kalra D JMIR Publications, 2016, 4(2): 12 DOI: 10.2196/medinform.5571 Abstract In parallel with the advances in big data-driven clinical research, the data safe haven concept has evolved over the last decade. It has …


Recent trends in the incidence of anxiety and prescription of anxiolytics and hypnotics in children and young people: An e-cohort study

September 1, 2015

John A, Marchant AL, McGregor JI, Tan JOA, Hutchings HA, Kovess V, Choppin S, Macleod J, Dennis MS, Lloyd K Journal of Affective Disorders, 2015, Published Ahead-of-Print DOI: 10.1016/j.jad.2015.05.002 Abstract Background Little is known regarding the recognition of anxiety in children and young people (CYP) in primary care. This study examined trends in the presentation, …


Epilepsy and Deprivation, a Data Linkage Study

March 2, 2015

Pickrell WO, Lacey AS, Bodger OG, Demmler JC, Thomas RH, Lyons RA, Smith PE, Rees MI and Kerr MP Epilepsia , 2015 , 56(4): 585-591 DOI: 10.1111/epi.12942 Summary Objective To investigate whether the link between epilepsy and deprivation is due to factors associated with deprivation (social causation) or factors associated with a diagnosis of epilepsy …


Selective Serotonin Reuptake Inhibitor Prescribing Before, During and After Pregnancy: a Population-based Study in Six European Regions

October 28, 2014

Charlton RA, Jordan S, Pierini A, Garne E, Neville AJ, Hansen AV, Gini R, Thayer D, Tingay K, Puccini A, Bos HJ, Nybo Andersen AM, Sinclair M, Dolk H, de Jong-van den Bergi LTW BJOG, 2014, Published Ahead-of-Print DOI: 10.1111/1471-0528.13143 Abstract Objective To explore the prescribing patterns of selective serotonin reuptake inhibitors (SSRIs) before, during …


Does the HPV Vaccination Programme Have Implications for Cervical Screening Programmes in the UK?

April 1, 2014

Beer H, Hibbitts S, Brophy S, Rahman MA, Waller J, Paranjothy S Vaccine, 2014, 32(16): 1828–1833 DOI: 10.1016/j.vaccine.2014.01.087 Abstract In the UK, a national HPV immunisation programme was implemented in 2008 for girls aged 12–13 years. In addition a catch-up programme was implemented for older girls up to 18 years of age from 2009 to …


Healthcare Databases in Europe for Studying Medicine Use and Safety During Pregnancy

March 24, 2014

Charlton RA, Neville AJ, Jordan S, Pierini A, Damse-Michel C, Klungsøyr K, Nybo Anderson AM, Hansen AV, Gini R, Bos J, Puccini A, Hurault-Delarue C, Brooks CJ, de Jong van den Berg LTW, de Vries CS Journal Pharmacoepidemiology and Drug Safety , 2014, 23(6): 586–594 DOI: 10.1002/pds.3613 Abstract Purpose The aim of this study was …


Obesity in Pregnancy: a Retrospective Prevalence-based Study on Health Service Utilisation and Costs on the NHS

January 21, 2014

Morgan K, Rahman M, Macey S, Atkinson M, Hill RA, Khanom A, Paranjothy S, Husain MJ, Brophy ST BMJ Open, 2014, 4: e003983 DOI: 10.1136/bmjopen-2013-003983 Abstract Objective To estimate the direct healthcare cost of being overweight or obese throughout pregnancy to the National Health Service in Wales. Design Retrospective prevalence-based study. Setting Combined linked anonymised …


Trends in the First Antiepileptic Drug Prescribed for Epilepsy Between 2000 and 2010

January 16, 2014

Pickrell WO, Lacey AS, Thomas RH, Smith PEM, Rees MI Seizure, 2014, 23(1): 77-80 DOI: 10.1136/bmjopen-2013-003983 Related Dataset: Primary Care GP Dataset Abstract Purpose To investigate changes in the choice of first anti-epileptic drug (AED) and co-prescription of folic acid after a new diagnosis of epilepsy. Methods We searched anonymised electronic primary care records dating …


A Case Study of the Secure Anonymous Information Linkage (SAIL) Gateway: A Privacy Protecting Remote Access System for Health Related Research and Evaluation

January 15, 2014

Jones KH, Ford DV, Jones C, D’Silva R, Thompson S, Brooks CJ, Heaven ML, Thayer DS, McNerney CL, Lyons RA Journal of Biomedical Informatics: special issue on medical data privacy 2014 DOI: 10.1016/j.jbi.2014.01.003 Abstract With the current expansion of data linkage research, the challenge is to find the balance between preserving the privacy of person-level …


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