SAIL PUBLICATIONS

The SAIL Databank: 10 Years of Spearheading Data Privacy and Research Utility

Jones KH, Ford DV, Lyons RA

Swansea University

DOI: http://dx.doi.org/10.23889/sail-databank.1001101


Introduction

The Secure Anonymised Information Linkage (SAIL) Databank is a national data safe haven of anonymised health and administrative datasets about the population of Wales. It was established by the Health Informatics Group at Swansea University Medical School in 2007 with core funding from Health and Care Research Wales of the Welsh Government, and has been operating for 10 years. The wealth of data within the Databank enables important questions to be answered that could not otherwise be addressed without prohibitive effort, if at all. From the outset, we have built many collaborations and have sought the optimum ways to make data available safely for public benefit. The past 10 years have seen rapid developments in data-intensive research and the SAIL Databank has been key in taking this forward. It has attracted multi-million pound investments and has been the springboard for many more. SAIL data is in increasing demand and its influence stretches across the world. The purpose of this report is to set out challenges that have been encountered and addressed, to celebrate achievements, and to encourage further collaboration with the SAIL Databank.

description SAIL Databank 10 Year Review